Legacy-Oriented Interventions for Supporting Family Bereavement and Psychosocial Adaptation in Pediatric Palliative Care: A Systematic Review.
Daniela Jesus-Ferreira, Paulo Reis-Pina
✦ AI-curated · Sources linked
In 30 seconds
This systematic review assessed legacy-oriented interventions (LOI) for children and families receiving pediatric palliative care. It included nine qualitative studies from the United States, involving 164 participants; eight studies were rated high quality and one moderate. Across the studies, LOI supported emotional connection with the child, coping and meaning-making, and ongoing relationships with healthcare professionals. Effects varied according to whether the legacy was tangible or intangible and the family’s stage of bereavement. Evidence on symptom control and broader social outcomes was limited.
Key findings
- Nine qualitative studies from the United States included 164 participants; eight were rated high quality and one moderate.
- LOI supported emotional connection with the child, coping, meaning-making, and sustained relationships with healthcare professionals.
- Reported effects varied by legacy type—tangible or intangible—and by the family’s stage of bereavement.
- Few studies examined symptom control or broader social outcomes.
Why it matters
Legacy-oriented activities may help families maintain emotional bonds and adapt to grief during pediatric palliative care. The review also highlights that these interventions can be adapted to cultural or spiritual contexts. However, the evidence is qualitative and geographically limited, so the findings offer insight into potential psychosocial value rather than a firm estimate of effectiveness.
What to keep in mind
The evidence comprised small qualitative studies, all conducted in the United States; few examined symptom control or broader social outcomes.